Hello My Friends,
I really haven't disappeared, or fallen off the planet. We are just having serious issues with Eden.
We had her appointment in Phoenix yesterday to see how much weight she gained since the last appointment 3 weeks ago. Unfortunately, she lost 1/2 pound. My baby is 8 and 1/2 years old, and weighs 43 pounds. This is not good. You can see each vertabrae and rib, and every other bone that is sticking out of her skin.
I am asking for your prayers. The doctor wants to give her a few more days to see how she does, and if there is no improvement, he will do the upper GI.
Since she was still getting wheat in her diet (still trying to figure out how), it could be that the Celiac has just destroyed her intestines, or some other organs, like it did to me. But we need to find out how to get weight on her.
While her heart condition is all cleared up, she does still have 3 heart murmurs. We have been assured that the murmurs are not in dangerous locations, but it is the heart issue that makes us so nervous to have her go under a general anesthetic.
Since the weekend is coming, Dana and I are leaning toward calling the doctor tomorrow and asking him to just do whatever we need to do. Today has not been good. Please pray for the Lord to give us wisdom as we try to do what is best for Eden. I am terrified to put her under, but she HAS to start gaining weight, NOT keep losing it. And please pray for her healing.
In the meantime, I have gotten rid of half my kitchen: deep fryer, grain mill, bread machine, pasta maker, wooden spoons, cutting boards, stoneware, etc, etc, etc. The cost of replacing this stuff is a little overwhelming, but fortunately, not all of it is necessary, so some of it can wait. I am having a Pampered Chef party tonight to try to get some of it for free, like the stoneware and cutting boards. My pastor's wife just started selling PC, and she is doing up a grand gluten-free dinner for us tonight. I'm looking forward to relaxing a little bit. I've been a bit uptight. :(
Got more to update on my grandpa and that scenario, but it will have to wait for now. Hope to come back and catch up on reading blogs, :) , and update on Grandpa.
We sincerely appreciate your prayers.
Love you guys,
beth
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1 comments:
I know this must be hard Beth. I will definitely continue to pray for Eden.
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