Brief Update

Hello Again!

Life has been a little out of control lately, and I haven't had the time or gumption to get in here and get caught up. Wanted to just post a note for those of you that aren't on my Facebook page to give you a little update. Today's a very busy day, with Art class, Science classes, 30 minutes to make and eat dinner and then off to Awana. So to be brief, I am just going to copy and paste the note from Facebook.

Just have a minute to up date everyone during a very rough day.All of the poking and prodding they did on my baby showed that she DOESN'T have any horrible disease that her symptoms might indicate. Praising God for that!!! :)

However, the tests showed that her intestines are so screwed up because she is still getting gluten somewhere in her diet. This KILLS me, because, #1, it means her horrible misery for the last 2 and 1/2 months could have been avoided, and #2, I am responsible. I have been soooo diligent to be sure we are strictly gluten free, but apparently, she has an extremely high sensitivity to it. And I have missed something somewhere.

Our main issues right now are finding out where the gluten is in our diet, so we can remove it, and trying to get some weight on her. She is so thin and small, she has completely fallen off the height/weight chart. She's at a negative percentage.

She has been given prescription 'medical food' that she has to drink 3 times a day to try to bulk her up. We have been trying to get down the first cup since this morning with no luck. She HATES it. I've added chocolate syrup til the cows come home. Then her brother went to take a drink to show her it wasn't that bad and he promptly threw up. That didn't help.

Please pray we can discover where the gluten is that remains so elusive, and that she can get this nasty stuff down and start gaining weight. I can see the vertebrae in her little back, and it makes me want to cry. :(

Lastly, the doctor wants to do one more test that requires putting her under a general anesthesia. Please pray that God would give us wisdom in making the right decision regarding this.

So grateful for all my peeps. You're the BEST!!!

I will add to this shortly!

Love, me