The top paragraph was the last thing from Facebook:
Listen to this!! I put Hershey's Syrup in that milkshake and she still couldn't drink it. THEN, my friend just told me that she read on the internet that Hershey's changed their formula a few months ago and it now has GLUTEN in it!!!! It doesn't say that anywhere on it!!! It can be included in ingredients as 'natural flavorings' and never say wheat anywhere on the label. I'm pulling all of my hair out!!!! Just giving Eden Ensure for now, until I can find another option.Running my own farm and raising my own cattle would be the safest, but don't think my HOA would approve the cattle!
Okay, here is the new info.
We have put Eden on Ensure Plus, which is to help adults gain weight. She likes it and she's drinking it AND eating small meals whenever she can get it down. The doctor called back and said that the EnsurePlus was fine to give her, he was just trying to give us something that our insurance would cover. They will cover a prescription for 'medical food', but not for Ensure. That Ensure Plus is EXPENSIVE! But I don't care if I have to sell my house, we'll do whatever it takes to get that baby well.
In the meantime, my buddy Kelly D. gave me a recipe for chocolate syrup. All you do is melt a bar of Ghiradelli DARK baking chocolate in a cup of heavy cream with a little sugar. We have decided not to call it chocolate syrup, Kelly. It is now called "crack for ice cream". You weren't kidding that stuff is addicting! Mmmmmmm, Mmmmmmmm!!!
Lastly, something I didn't put on Facebook was the result of the DNA test the Dr. ran on Eden. Apparently, 95% of Celiacs have this D2Q marker and the other 5% of Celiacs have a D8Q marker. My little Eden carries BOTH of these markers. So, he said this could be why she is sooooo super sensitive to gluten. Now, I not only have to make sure there are no gluten ingredients, but I can't even buy something that's processed in a facility that uses wheat. Do you know how many things this cuts out for us? Almost every single packaged food. I can't think about it without sinking down in my chair a little bit.
BUT, God is soooo good. He will give us the strength and the grace to get through this. And I know a LOT worse things could have showed up in those tests, and we are eternally grateful they did not.
We have a trip to San Diego planned at the end of this month and eating out is going to be a challenge. There are several gluten-free restaurants in San Diego, but I think we'll be bringing most of our own food, since we can't afford these restaurants 3 times a day. Gluten-free food is very expensive.
Getting ready for all these classes today, so I will make my reading rounds as soon as I can. I miss reading your posts!
Much love and gratefulness.
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2 comments:
I completely understand what you are going through. I just realized how allergic I am to diary. I had the smallest amount today for lunch and I can already feel it working havoc on my body. I know I must be allergic to other things. I am trying spelt flour this month. I get tired of making everything from scratch. I gave up on reading labels (there are so many different words for a single ingredient) and decided if I did not make it I probably should not eat it or I need to be willing to pay the price. I will pray for you.
I will be praying for you guys. I know how hard it is to find good affordable gluten-free food. Eating out is a nightmare.
I'll keep passing on any good stuff I find. (There's a brownie muffin in the works, just to let you know!)
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